Sunday, May 23, 2010

Better than I was the other day

I am feeling better than I was the other day. It hits me like a truck when it starts to act up. Don't get me wrong, everyday I feel like crap and struggle, but there are some days where I am literally couch or bed bound, so sick that I just can't function at all. I lay there feeling as if death is on its way. It comes at times with a deep feeling that I have been poisoned and a nausea that seems to fill my whole body.

What I really am upset about the most is not being able to stand most days past 15 minutes comfortably. After standing that amount of time and sometimes sooner the dizzy spells start and when I am at my sink trying to do dishes I have the feeling as if I am falling towards it. My heart rate on a bad day will be 150-160 standing, thankfully most days it is 120-130 standing. Then like magic I have a good day or a few good hours where standing it is 80-96.

This of course keeps me a prisoner in my own home. A long time ago I had anxiety that kept me inside, but for completely different reasons. Even back then I would just shop at the store at night. Now it doesn't matter what time it is. I am just trapped.

There was a fire in my complex last week and my main concern at first was that it was in my building. Not because I would lose my stuff in a fire, but because it was hot out and heat can make me so much sicker. I was concerned that I would have to go outside and sit on the lawn. There is no way I could just stand some place. Thankfully it was not in my building and also turned out to be a small kitchen fire, no real damage.

The other day I had yet another argument with my mother when she called me. I can't take it anymore esp. when I feel very ill. They (my parents) refuse to hear how sick I actually am. They are still stuck on some agoraphobia kick and that I am somehow just mentally ill. She says to me "I know you don't like to leave your apartment, but its warm outside, why don't you go out and sit on the porch." This sent me into a rage, right or wrong. How many times over the past 16 months have I said I can't take any type of heat and how sick it makes me. I can hardly even take showers anymore. When I do they are cold and that is not very comfortable. I would love nothing more than to be able to sit outside. It has nothing to do what so ever that "I don't like too."

Since I had an argument with my mother on May 2nd I have been biting my tongue, till that statement was made. I just talk about general things like the news, and listen to her health issues. My father of course never calls and never has unless it had something to do with a bill. I have had a lot of time to think over this past 16 months about my life and my past. I love my parents, but I also realize the level of emotion abuse that went on in that house. Yet, I always carry this guilt around because being this sick they are paying my half of the bills. Money is not love though and I am beginning to feel more like a pet than a son. Month in and month out the bills get paid, but I am kept at the same level of illness and a refusal to help get me someplace that I might find that help. I much rather be able to get to a doctor out of state who deals with these issues. I have hit a wall in Albany. I can't get through to any doctor how bad off I am. I tell them the same things I write about in this blog. However I sit here and there looking fine. On the outside I look 100% OK unless I go pale. They stay stuck on how it is anxiety and ignore that this so called mystery anxiety only happens when I am standing. Not to mention while anxiety does cause a fast heart rate it does not only do it while the person stands and then stops when the person sits back down. An average heart rate increases about 5 to 15 beats when a person stands. I increase 25-50 beats.

I am effected by weather changes in the worst way. Esp. if the weather turns hot. This coming week we are going to be in the 90's a few times. I am not looking forward to that. I just hope it isn't that bad.

As far as people telling me I am depressed. That really annoys me because with all the crap I deal with I am happy. As happy as one can expect. I am lonely a lot, pretty much at this point have lost my family. No real life friends. Yet, I am hopeful I will find an answer somehow and be helped. I am not miserable. I read and go online. I laugh at TV shows and as soon as a bad spell leaves I am right back to trying to help myself through exercise and eating well. I have days where I cry and cry hard, but that is because sometimes what I deal with becomes to much, it all crashes yes I allow myself to have a pity party for awhile and then I come out of it and keep fighting.

I am sorry that my mom is still sick, the truth of the matter is even if she wasn't it would be the same. It is how it has always been. My father and mother have always been this way. What finally clicked in me a month ago was that they will never change. I am chasing after a relationship with them that I will never get. So I stopped.

Thursday, May 20, 2010

I feel like shit

I hate days like this. I am so fucking sick. I don't even know how to handle it anymore. I have had trouble sleeping for days. I was sitting on the couch, just on my laptop and felt so tired that I was going to attempt to try to head to bed again. I got up off the couch to go pee and by the time I got to the bathroom I was white as a ghost and felt tingly and dizzy. I had to sit on the toilet to go pee because I was concerned I might faint.

I then went to the bedroom and laid in bed trying to sleep as I could feel every rapid heart beat in my chest. I finally dozed off for a minute or two and then woke up from a feeling like I was fainting in my sleep. I then tried to fall back to sleep just laying there feeling flu like and poisoned through my whole body with my ears ringing.

I decided to get back up to get a glass of milk. I went back to the couch and ended up spilling all 16oz of milk all over my carpet. Went back to the kitchen and got paper towels and cleaned it up best I could.

Now I am back on the couch feeling cold and sick. I just want to cry. I have no help in this at all. I am often to weak to even get to a doctors office even if I wanted too, and after the way I have been treated over the past year I am too nervous to go back and fight for myself. That is one thing I don't have the energy for and that is to be nervous and upset. I am too sick to be upset. Being upset takes a lot of energy, energy I don't have.

R.I.P. David Daniel

I was casual friends with Dave Daniel in high school. I haven't seen him in years, but I was saddened by his untimely death. I also found it sad that no one in his family noticed he was gone. He was pulled from a river a few days ago. He had been in there for months.

From the news article:

Police identify body pulled from river
Foul play not suspected; investigation continuing

Troy -- The body pulled from the Hudson River on Monday has been identified as a 31-year-old Capital Region man who had apparently been in the water for months.

Investigators have found no signs of foul play in the death of David K. Daniel, who had addresses in both Troy and Albany.

Sgt. Terry Buchanan said Daniel had paperwork in his possession from February and may have been in the river since around that time or shortly after.

''He was in the water for a while and apparently his family never missed him,'' Buchanan said.

Daniel's mother lives locally, police said.

Buchanan did not know if the man had a job. His body was discovered by men fishing Monday evening near the Bruno Machine company along the river in South Troy.

Troy Police detectives are continuing to investigate Daniel's death, Buchanan said.

Read more:

Saturday, May 1, 2010

Postural Orthostatic Tachycardia Syndrome Maybe? (POTS)

Sorry about the volume my mic is having issues. I guess time for a new one. Just make sure your sound is up.